part XII… no babies, just maybes

…a continuation of my story from August 23, 2017 … part XI… pregnant??

November 2011

As I boarded the plane to fly halfway across the continent, I looked forward to a week-long seminar that my trainer had worked so hard for a few of us to attend. No babies, so maybe a week independent of family routines, household projects, bills to pay, classroom lesson plans, parent phone calls, testing, etc…. maybe having a week with one central focus would do me good? Maybe this might be a little bonus time for me to figure out what was truly going on with me. Maybe. All I had to do was attend classes all day, do a bit of homework in the evening and relax, right? Maybe I would have enough energy and no nausea and I could even exercise each day? Maybe?!

Day one… the shock of fatigue railroaded me. Day two… I could barely keep my head up at an early dinner with my colleagues. I bowed out before the meal was over and dove directly into bed. Days three and four put me alone for the entire evening after training ended at 4:00. Lying in bed, I struggled to get a snack for dinner and clawed through the homework as if I were dangling off a building holding on by my fingernails.

I really couldn’t understand what was happening to me. My chiropractor insisted that this was part of the residual effects of my concussion. But can a concussion make you feel this way eight months after the initial hit? Can a person truly feel nauseous, fatigued, dizzy and confused off and on for all this time? All the general doctors I had seen for this had only screened me for mood swings… linking these weird symptoms to my concussion only led them to say: “Aren’t you over that concussion yet?”

Well,  that sort of thinking sends a person like me on a path of challenge mixed with spoonfuls of denial! If I am ‘supposed to get over this’ then what is my problem??? I need to buck up and fight. I need to rise above the storm – tackle this head on – overcome this adversity…

“O LORD, you have searched me and known me!   You know when I sit down and when I rise up; you discern my thoughts from afar.  You search out my path and my lying down and are acquainted with all my ways.  Even before a word is on my tongue, behold, O LORD, you know it altogether.  You hem me in, behind and before, and lay your hand upon me.  Such knowledge is too wonderful for me; it is high; I cannot attain it.”  

Psalm 139:1-6

Lord, only you know… how can I know?

As I fought my way through the final day of training, an endless day of taxis, planes and a bus… I needed to make a decision if I was going to follow through on next week’s four hour neurological exam. My hope was to cancel it and move past Dr. Jennifer’s noticings. Maybe there was something major wrong with me? Maybe I had cancer? Maybe I was anemic? Maybe that old liver issue had flared back up? Maybe … okay maybe… maybe the concussion did do some lasting damage?

Upon arriving home, all I wanted to do was plant tulips with my daughters and play outside in the extra warm November we had been graced with. But I couldn’t. My pillow was my only warmth and I played and planted in my dreams… another weekend disjointed from my family… missing out on their conversations and not tending to their needs. Survival. That was my only thought… if I can just survive this a little bit longer… maybe then it will go away?

photo-20

 

 

On a delightful note… my daughters planted tulips without me, and as I lay sleeping, they sent me this sweet picture of assurance. The next spring, tulips popped up all over the yard rather than in the gardens… the random placement of these bulbs continues to bring me a giggle and a smile each spring… it’s all going to be okay!

 

 

 

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis that they are not used for personal profit or any financial gain. Thank you.*

part XI… pregnant??

September 2011:
Two months back at work and strange things started to happen. Around noon each Thursday I would get super nauseated, beyond tired, often needing to go home sick – sometimes having to spend the next 3 days in bed. Work had begun to make me ridiculously tired – my Tuesday nights began to feel suspiciously similar to Friday nights after a 60 hour week. And then the nausea became more frequent.

PregnantSEMD

Lucie ~ 1998

I took a pregnancy test… because I most definitely had experienced these symptoms twice before in my life!
There is absolutely no way I’m pregnant. I’m 44 years old – I’m pretty sure I’m pre-menopausal for crying out loud! Well it can’t be, I mean, my tubes were tied right after Zella was born. And not just tied, but tied in double knots (if Eddie was finally able to convince the doctor to do it). It’s just not possible, is it? But they say God does have a sense of humor? So…?
Results in. Nope. Not pregnant. Great! But what’s with the pregnant-like symptoms? Hmmm…?
October:
By now my weeks had settled into a consistent pattern:
Monday – exhausted. In bed early.
Tuesday – super exhausted. In bed super early.
Wednesday – whatever’s worse than super exhausted. In bed instantly upon arriving home, then up again and off to church for Wednesday night activities.
Thursday – a little dizzy in the morning… kinda like day 1 concussion back in March… but not that bad… then by noon my body would just sort of shut down. Nausea, Vertigo, Fatigue and Confusion… the Fab Four, all at the same time.
Friday thru Sunday – sick. In and out of bed.

 

PregnantZRD

Lydia ~ 2002

I decided to take pregnancy test #2.  What was that Sherlock Holmes quote… “Once you eliminate the impossible, whatever remains…” something like that?   Yup… I’ll take the home pregnancy test again, just to eliminate that impossibility once and for all.
Results in. Nope. Definitely not pregnant, and definitely at a loss as to what was making me feel this way.

 

Early November:
Sick and tired and desperate for some kind of answer, I took pregnancy test #3.
Oh what the heck. I’ve been taking pregnancy tests for almost three months now, what’s the harm in another? It’s silly. I know that. By this time, if I was actually pregnant (which of course I could not be) I would have had plenty of other evidence of it. But if I’m not pregnant, why do I keep feeling pregnant?
Results in. I’m not pregnant. Of course not. Yay? I guess..?
But my symptoms were getting worse and work was becoming more difficult. And it seemed that I still wasn’t any closer to finding a reason for them. It was getting harder and harder to just shrug the nausea and fatigue off. After finally ruling out pregnancy, and after doctor visits that ruled out any sickness that might have been causing me to feel that way, my thoughts began to turn back to my concussion. Yet all of the doctors had cleared me, hadn’t they? They had shined lights in my eyes and had me follow their fingers multiple times and told me “You’re good to go. Time to get back in the saddle and leave that brain injury behind you. Go get ‘em tiger!” or something to that effect, which was certainly exactly what I wanted to hear.

 

Actually, it wasn’t all of the doctors that said that. Dr Jennifer, my reliable and knowledgeable chiropractor, hadn’t truly given me the green light to resume my life. I had started going to her on a monthly basis about 5 years prior to my head injury, so she knew me very well. After my accident, when I saw her on my previously scheduled appointments, she started asking me entirely different questions than the other doctors had. She noticed subtle differences in me that neither I nor anyone else had noticed. For example, at my very first visit after the concussion, she asked me if I’d noticed that my speech had slowed. She had an insight into my concussion that was so far beyond my grasp… that I kinda didn’t pay attention to her. When I told her of my failed pregnancy tests and the symptoms that prompted me to take them … and I laughed at how silly I’d been, she didn’t laugh. She looked concerned and quickly ordered a thorough exam of neurological testing in Minneapolis.


“He is the image of the invisible God, the firstborn of all creation. For by him all things were created, in heaven and on earth, visible and invisible, whether thrones or dominions or rulers or authorities—all things were created through him and for him. And he is before all things, and in him all things hold together.”  Colossians 1:17

In hindsight, I was “sort of” pregnant at that point. Not realizing it at the time, I was awkwardly in the process of unknowingly giving birth to a new era in my life. And like it slowly tipped my world upside down when I had my babies, my life was changing dramatically. As time went on, it was only in him that I was holding together.

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis that they are not used for personal profit or any financial gain. Thank you.*

part VII… the blessings begin

On the afternoon of February 28th, I found myself in the local hospital. At the foot of my ER bed, spun a tornado of incoherent conversations between the doctors, nurses and my husband – decisions – options – “the helicopter is ready” – “who do we call first?” – another CAT scan to check the bleeding – more vomit…

phiaSADat13bday …there sat my little Lucie. It was, to me, the only thing I was able to understand, at least partially. I wondered, why is she so sad? Why does she look so pale? Why is she on her phone when she knows it is for emergencies only? Why isn’t her dad paying any attention to her? She looks like she needs a hug. Is she crying?  Ed… quit talking to all these strangers and go to Lucie… I can’t get to her…. something is holding me down.  Would you please hold her? She needs you!

To this day I have never fully been able to crack the shell that Lucie created around herself in those hours in that emergency room. Her 12-year-old heart was breaking. Her mind was whirling with fears and anxieties about her mama that no child should ever have to face. She had to somehow survive it.

She was so brave (she’s always so very brave). She was fighting this battle for me. My little baby was fighting for me. She texted every person in her life… asking them to pray for me.  A gazillion aunts, uncles, cousins, friends… she recruited to be our prayer warriors… she reached out to them all.

Blessing #1… the internal bleeding in my head – suddenly stopped (6:00p).

No more vomiting. No more brain surgery. No helicopter ride to Minneapolis. No more pending death. Eddie’s ‘mad face’ melted and he smiled at me. My condition was finally stable. Gradually, I was wheeled from the ER room to a room in the hospital. Lucie’s texting and phone calls shifted from pleas for prayers to shouts of praises! … her cheeks grew pink papakissingphiaonhead.jpgagain… as they wheeled me down the hall to my new room. My heart smiled while watching her beautiful red hair bouncing as she skipped along and led our little parade of doctors, nurses, and loved ones.

“…do not be anxious about anything, but in everything by prayer and supplication WITH THANKSGIVING let your requests be made known to God.”   Philippians 4:6

“WITH THANKSGIVING” … Those two words in the above verse have humbled me for years. Getting thrust into a stressful situation and praying to ‘not be anxious’ is one thing. I get that. But going into a stressful situation, (let alone a near death one), with thanksgiving  and trust for what God is already doing according to His plan – in this very situation – well that is an entirely different perspective for me – a perspective that I could barely fathom at the time. Little did I know, that in the coming years, amidst all of the many anxieties that this concussion would bring to all aspects of my family’s lives, it has also, somehow, brought even more praise and thanksgiving for the amazing things God has done for us through it all.

Tender care and prayers from our pastor, our families, friends and co-workers… carried us through the quick hospital days and transitioned us back into our home life. The doctor sent me home on day two and assured us of the phenomenal turnaround in my condition. Her only prescription was: “Take it easy for a couple weeks. Come back if there are any changes in mood or behaviors. Go home and rest.”

Blessing #2… we are all four home and whole, together.

 

Before you leave this page, if you know of someone or you, yourself, have experienced a concussion… mild, moderate or severe… Please do go to the links below from our website. They are a collection of symptoms, resources and post-concussion care tips. It has taken me 6+ years to sift through, find, and collect the valuable resources below. Had I been made aware of them at the time of my injury, I may have healed differently (possibly completely) from this TBI. The minute your brain is altered through an injury (or any traumatic event), it miraculously starts rewiring to accommodate the alteration. As the hours, the days, the months and the years ticked by for me… rewiring occurred. But it occurred incorrectly. Please take action immediately.

post-concussion symptoms & resources

post-concussion CARE tips & tools

U R NOT alone!

 (please also click on the U R NOT alone! TAB to reveal personal stories from many survivors)

 

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis they are not used for personal profit or any financial gain. Thank you.*

part V… the family home

 

About two years after living in our temporary Minnesota home, we were ready to flip it and go for that dream home where we hoped to draw pencil marks on the walls showing how tall our kids had grown; plant trees which would someday grow tall enough to decorate with Christmas lights; and create an environment that we hoped our girls would long to return to with their families one day. But life exists outside of our dreams.

The economy fell into a recession… especially the housing market. All brakes went on. Instead of moving forward with our grand plans of a craftsman rendition of a dream home on some lake, we were quietly thankful that our affordable little home remained just that – affordable.

Meanwhile, my career was accelerating. Nope… not in the way of finances (hey – I’m in the world of education – not banking :)!  Rather the velocity increased in the way of  time, training and learning. My career began to morph into part classroom teaching and part coaching other teachers.

My job was to introduce and instruct established teachers in a new and internationally effective reading program, straight out of New Zealand. Because this concept was new to the Midwest and to our district and to its established teachers, it wasn’t always well received. Therefore, in addition to just simply doing my job, the politics of the job began to take up more and more of an already full schedule. Forty hour work weeks quickly grew to 45, 50, 60, 65+ hours a week… along with a nightly ‘to do’ list staring at me when I was home, trying to be “present” with my family.

Now remember, someone like me truly doesn’t mind this much work. In fact, I’m a bit like a gerbil on a wheel – as long as the wheel’s spinning, I’m good. What does happen to folks like me… is we lose sight of the people and relationships right in front of us.

family pic quebec 2006~good one  Our family had become involved in short-term mission work, Bible studies, sports, youth groups, music lessons, etc…. Despite our best efforts, we had become the typical way-too-busy American family. I had too many balls in the air and I was constantly trying to find that elusive balance between my career and my family.  

Amidst everything – the too busy but still happy family life and my too busy but still satisfying job – sometime in January of 2011, we started re-researching the possibility of finding that dream home. The market had found some stability and our house was estimated to turn a profit. By the end of February we had remodeled the basement and repainted the whole house. Our home was ready to be put on the market and the dream house was once again in our sights.

Then, on February 28, 2011,  everything changed. There was a wild glide into mid-air, a thud, a flash of light and a sudden, blinding pain… and nothing has been the same since.

I didn’t understand it – that everything had changed for me. Not then. I didn’t understand it as we raced to the hospital the next afternoon with my head hanging over the puke bucket while I was on the phone with a colleague, asking her to conduct the training I had planned for the next day. I didn’t understand it as the doctors discussed airlifting me to Minneapolis for an emergency brain surgery while I made plans in my head for Lucie’s surprise birthday party now only a month away.

As the doctors explained to me what a Subdural Hematoma is, I was thinking about our house. The realtors would be there in a week to take pictures. Did I have everything ready? Should I take all of the family pictures down like they suggested?  Did I have all my testing done at school, before kids left for Spring Break?  Were my report cards completed?  ...CAT scan (are they the same as CT scans?) Why was Lucie going through so much at school?  Why did kids leave her out?  Am I spending enough time with my children?  Do I know them? Was Lydia truly as happy and as confident as she seemed? … heart monitor?… (why? I get the brain scan but… an MRI now? ) When would I get all the student’s data entered from the testing if I were in the hospital?  How would I be able to analyze the data if I couldn’t even see the bucket in front of me earlier today?  Could I still speak French?  Oh, no!  What if I lose my language abilities in both French and English… let me try it.  OK, no words French or English… just confusion.  I’ll try later. …more doctors shining more lights in my eyes… (I feel like the lights are killing me). Where’s my mom?  Is she still on her trip? Why is Lucie at the foot of the bed?  She looks sad?  How can I comfort her?  My dad looked quite pale when he came to get Lydia for us, why?  What is Eddie doing? … please don’t make me try to follow your finger again… Would someone please get me a Sudoku, so I can prove that I still have a brain?  Wait, I don’t play Sudoku… note-to-self… learn how to play Sudoku!

As unbelievable as this sounds, about four years passed before I was able to understand and come to grips with the fact that nothing was ever going to be quite the same for me again.  There would be blessings, but they would look a bit different and they’d be harder to see. Not harder to see because they were smaller – I don’t think God gives us small blessings. I think His blessings are all infinitely enormous, all equally wonderful.

I think it’s our vision that fails us. His blessings were there through all of this dark period. Some I couldn’t see at all and missed entirely, and others I could barely make out through the fog – I saw only bits and pieces. But He was teaching me to look closer and to try and focus on what He was doing in my life.

Eventually I got so if I squinted, I could start to see the beautiful pattern in what initially looked like a big, ugly mess.

“We are afflicted in every way, but not crushed; perplexed, but not driven to despair; persecuted, but not forsaken; struck down, but not destroyed.”     2 Corinthians 4:8

I believed that verse meant He wanted me to never give up… and I was a stellar model of that in my newly ‘concussed’ predicament. I thought the words were about me and what I could do. But I have since come to believe that this verse isn’t about me at all. It is about Him.  He wants me never to give up hope in Him.

Ever so slowly I learned to give up on myself and to trust in Him. All of my efforts to overcome this injury were failing. Not one of my attempts at a normal life were successful.

Finally, grudgingly I agreed to hit the pause button on all of the many plans I had made for my life.

But the pause button wasn’t enough. He wanted me to hit STOP…

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis they are not used for personal profit or any financial gain. Thank you.*