part XI… pregnant??

September 2011:
Two months back at work and strange things started to happen. Around noon each Thursday I would get super nauseated, beyond tired, often needing to go home sick – sometimes having to spend the next 3 days in bed. Work had begun to make me ridiculously tired – my Tuesday nights began to feel suspiciously similar to Friday nights after a 60 hour week. And then the nausea became more frequent.

PregnantSEMD

Lucie ~ 1998

I took a pregnancy test… because I most definitely had experienced these symptoms twice before in my life!
There is absolutely no way I’m pregnant. I’m 44 years old – I’m pretty sure I’m pre-menopausal for crying out loud! Well it can’t be, I mean, my tubes were tied right after Zella was born. And not just tied, but tied in double knots (if Eddie was finally able to convince the doctor to do it). It’s just not possible, is it? But they say God does have a sense of humor? So…?
Results in. Nope. Not pregnant. Great! But what’s with the pregnant-like symptoms? Hmmm…?
October:
By now my weeks had settled into a consistent pattern:
Monday – exhausted. In bed early.
Tuesday – super exhausted. In bed super early.
Wednesday – whatever’s worse than super exhausted. In bed instantly upon arriving home, then up again and off to church for Wednesday night activities.
Thursday – a little dizzy in the morning… kinda like day 1 concussion back in March… but not that bad… then by noon my body would just sort of shut down. Nausea, Vertigo, Fatigue and Confusion… the Fab Four, all at the same time.
Friday thru Sunday – sick. In and out of bed.

 

PregnantZRD

Lydia ~ 2002

I decided to take pregnancy test #2.  What was that Sherlock Holmes quote… “Once you eliminate the impossible, whatever remains…” something like that?   Yup… I’ll take the home pregnancy test again, just to eliminate that impossibility once and for all.
Results in. Nope. Definitely not pregnant, and definitely at a loss as to what was making me feel this way.

 

Early November:
Sick and tired and desperate for some kind of answer, I took pregnancy test #3.
Oh what the heck. I’ve been taking pregnancy tests for almost three months now, what’s the harm in another? It’s silly. I know that. By this time, if I was actually pregnant (which of course I could not be) I would have had plenty of other evidence of it. But if I’m not pregnant, why do I keep feeling pregnant?
Results in. I’m not pregnant. Of course not. Yay? I guess..?
But my symptoms were getting worse and work was becoming more difficult. And it seemed that I still wasn’t any closer to finding a reason for them. It was getting harder and harder to just shrug the nausea and fatigue off. After finally ruling out pregnancy, and after doctor visits that ruled out any sickness that might have been causing me to feel that way, my thoughts began to turn back to my concussion. Yet all of the doctors had cleared me, hadn’t they? They had shined lights in my eyes and had me follow their fingers multiple times and told me “You’re good to go. Time to get back in the saddle and leave that brain injury behind you. Go get ‘em tiger!” or something to that effect, which was certainly exactly what I wanted to hear.

 

Actually, it wasn’t all of the doctors that said that. Dr Jennifer, my reliable and knowledgeable chiropractor, hadn’t truly given me the green light to resume my life. I had started going to her on a monthly basis about 5 years prior to my head injury, so she knew me very well. After my accident, when I saw her on my previously scheduled appointments, she started asking me entirely different questions than the other doctors had. She noticed subtle differences in me that neither I nor anyone else had noticed. For example, at my very first visit after the concussion, she asked me if I’d noticed that my speech had slowed. She had an insight into my concussion that was so far beyond my grasp… that I kinda didn’t pay attention to her. When I told her of my failed pregnancy tests and the symptoms that prompted me to take them … and I laughed at how silly I’d been, she didn’t laugh. She looked concerned and quickly ordered a thorough exam of neurological testing in Minneapolis.


“He is the image of the invisible God, the firstborn of all creation. For by him all things were created, in heaven and on earth, visible and invisible, whether thrones or dominions or rulers or authorities—all things were created through him and for him. And he is before all things, and in him all things hold together.”  Colossians 1:17

In hindsight, I was “sort of” pregnant at that point. Not realizing it at the time, I was awkwardly in the process of unknowingly giving birth to a new era in my life. And like it slowly tipped my world upside down when I had my babies, my life was changing dramatically. As time went on, it was only in him that I was holding together.

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis that they are not used for personal profit or any financial gain. Thank you.*

part VII… the blessings begin

On the afternoon of February 28th, I found myself in the local hospital. At the foot of my ER bed, spun a tornado of incoherent conversations between the doctors, nurses and my husband – decisions – options – “the helicopter is ready” – “who do we call first?” – another CAT scan to check the bleeding – more vomit…

phiaSADat13bday …there sat my little Lucie. It was, to me, the only thing I was able to understand, at least partially. I wondered, why is she so sad? Why does she look so pale? Why is she on her phone when she knows it is for emergencies only? Why isn’t her dad paying any attention to her? She looks like she needs a hug. Is she crying?  Ed… quit talking to all these strangers and go to Lucie… I can’t get to her…. something is holding me down.  Would you please hold her? She needs you!

To this day I have never fully been able to crack the shell that Lucie created around herself in those hours in that emergency room. Her 12-year-old heart was breaking. Her mind was whirling with fears and anxieties about her mama that no child should ever have to face. She had to somehow survive it.

She was so brave (she’s always so very brave). She was fighting this battle for me. My little baby was fighting for me. She texted every person in her life… asking them to pray for me.  A gazillion aunts, uncles, cousins, friends… she recruited to be our prayer warriors… she reached out to them all.

Blessing #1… the internal bleeding in my head – suddenly stopped (6:00p).

No more vomiting. No more brain surgery. No helicopter ride to Minneapolis. No more pending death. Eddie’s ‘mad face’ melted and he smiled at me. My condition was finally stable. Gradually, I was wheeled from the ER room to a room in the hospital. Lucie’s texting and phone calls shifted from pleas for prayers to shouts of praises! … her cheeks grew pink papakissingphiaonhead.jpgagain… as they wheeled me down the hall to my new room. My heart smiled while watching her beautiful red hair bouncing as she skipped along and led our little parade of doctors, nurses, and loved ones.

“…do not be anxious about anything, but in everything by prayer and supplication WITH THANKSGIVING let your requests be made known to God.”   Philippians 4:6

“WITH THANKSGIVING” … Those two words in the above verse have humbled me for years. Getting thrust into a stressful situation and praying to ‘not be anxious’ is one thing. I get that. But going into a stressful situation, (let alone a near death one), with thanksgiving  and trust for what God is already doing according to His plan – in this very situation – well that is an entirely different perspective for me – a perspective that I could barely fathom at the time. Little did I know, that in the coming years, amidst all of the many anxieties that this concussion would bring to all aspects of my family’s lives, it has also, somehow, brought even more praise and thanksgiving for the amazing things God has done for us through it all.

Tender care and prayers from our pastor, our families, friends and co-workers… carried us through the quick hospital days and transitioned us back into our home life. The doctor sent me home on day two and assured us of the phenomenal turnaround in my condition. Her only prescription was: “Take it easy for a couple weeks. Come back if there are any changes in mood or behaviors. Go home and rest.”

Blessing #2… we are all four home and whole, together.

 

Before you leave this page, if you know of someone or you, yourself, have experienced a concussion… mild, moderate or severe… Please do go to the links below from our website. They are a collection of symptoms, resources and post-concussion care tips. It has taken me 6+ years to sift through, find, and collect the valuable resources below. Had I been made aware of them at the time of my injury, I may have healed differently (possibly completely) from this TBI. The minute your brain is altered through an injury (or any traumatic event), it miraculously starts rewiring to accommodate the alteration. As the hours, the days, the months and the years ticked by for me… rewiring occurred. But it occurred incorrectly. Please take action immediately.

post-concussion symptoms & resources

post-concussion CARE tips & tools

U R NOT alone!

 (please also click on the U R NOT alone! TAB to reveal personal stories from many survivors)

 

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis they are not used for personal profit or any financial gain. Thank you.*

mid-month news & info  ~ june 2017

IMG_2533

“This is the day the Lord has made, let us rejoice and be glad in it.”        Psalm 118:24

*NEWS*

  • Depression is another Invisible Illness, so we would like to highlight it on tripping Up the Down escalator.  It is one of those things that hides inside of us and often gets overlooked by the outside world. In fact, most people suffering from depression are very good at disguising it… even as they try to plow through their daily routine! Fortunately, we have had Jill volunteer to share her personal story so that…
    • we can know that we are not alone!
    • we can learn more about the signs and symptoms of depression as we help ourselves or loved ones through this difficult place.
    • we can consider sharing our own story in some way.
  • Please read Jill’s story about her struggle with depression (you can click on the blue link or you can find her story in U R NOT alone… our stories).  Please pray for her continued healing and the healing of others battling this Invisible Illness.
  • Another personal story was shared via a song. At age 18, Mandy suffered an Invisible Illness that changed her life forever. You may have heard this on TV… we now have it included on our site in U R NOT alone… our stories… mandy’s story/song. 
  • Sometime in July… we will open On the Lighter Side!  This section will be its own sort of blog – digging into male and female thinking, rationale, observations, and plain old common sense (or plain old lack of it). As we walk through this life… we at tUtDe are trying to remember to smile. We hope you will too! 🙂

Info

  • We did it!!  You no longer need to have your eyes working today!! So far, we have successfully added “listening links” to the following areas.
    • The home page
    • Blog:  part I…what just happened? 
    • Blog:  part II… FROM THE TOP
      • See this icon at the end of an article to retrieve:  listeninglinkzzzz listening link

 

  • Share – SHARE –share!  Please consider sharing a trial you have had in your life and how you are dealing with it from day to day; how you have found a blessing in it; or maybe you are deep in the middle of the chaos that comes with a life-changing illness and you just need ‘sharing therapy’ to weed through the days?  We thank Jill for courageously sharing… let her courage be yours!
    • Worried you cannot write your story?…. Still contact us and we’d be happy to help you by either writing it with you/for you; editing it with you; or maybe even recording it instead?
    • We have two friends working on sharing. One will share with us about her challenges with PTSD and another about life with Fibromyalgia.
  • If you appreciate our website, please consider “following” it via your email. No worries… this won’t dominate your daily mail… you will only receive an email when we post our weekly blogs.  This will help our ratings and spread the hope to more people in need!  Thanks.
*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis they are not used for personal profit or any financial gain. Thank you.*

all out of options

This illness can make one feel trapped inside one’s own body.  It can be crippling.  It can be devastating.  Statistically, people who suffer a TBI are more likely to have suicidal tendencies.**  I believe it is due to the brain feeling trapped and unable to function normally  (now don’t you be that statistic!).  You can do this… there are ways to survive.  U R NOT Alone

It can also be devastating because this concussion stuff has ‘rocked our world’ to the point where we are  no longer recognizable.  I often describe my life as it having taken a 180 degree turn when the injury occurred.  All that I must now be as a person is the exact opposite of what I had known me to be for 44 years, pre-injury.

So, when I have a day when I cannot recognize me… and I cannot accept my circumstances… yet I cannot change a thing… and everyone is talking too fast or too loud… and I can’t find my other shoe… and the dogs need to go out but I just need to go to bed… and I started something, was it laundry?  No… was it an email?  No…

stopsign4  (just stop!) 

When I just need to STOP but don’t want to ‘give up’, I have a little trick that helps me to know that I existed for a reason today… but I do need to STOP everything.                   Everything…                                        and ‘hibernate’ until this ‘brain spell’ subsides.  After these four accomplishments below, I find that I can safely let go of the day and just cater to my injury… not feel like a failure… leave the laundry… eat a snack bar instead of a meal…. go barefoot…

…so before I crash I give this a go to give me some purpose to the day.  Please try it and believe that the LORD has a purpose for each of your days:

  1. Read & write any Bible verse on a piece of paper… keep it near… keep rereading it.
  2. Do one easy task for someone else.
  3. Do one easy task for myself.
  4. Let go… be done with my goals for the day… crash… rest ….sleep.

A fellow concussion survivor shares a FUN, survivor-community-building, long-term solution… get your phone ready to download her free APP!

SuperBetter
TBI survivor

“For I know the plans I have for you, declares the LORD, plans for welfare and not for evil, to give you a future and a hope. Then you will call upon me and come and pray to me, and I will hear you. You will seek me and find me, when you seek me with all your heart.”   

Jeremiah 29:11-13

**References

[Note that I have only cited a small amount of research on this topic… there is a lot more out there!]
*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis they are not used for personal profit or any financial gain. Thank you.*

mid-month NEWS & info ~ may 2017

*NEWS*

  • NEW opportunity on our website’s contact tab:  there is a place for you to submit your personal story! Please write to us and share your trials and successes.  Caregivers, family members and friends are also encouraged to share their perspective… we know it affects everyone.
  • NEW blogs will be posted weekly on Wednesdays.  Please join tripping Up the Down escalator… and follow us so you don’t miss even 1 blog full of blessings!
  • One blog each month will be focused on news & info… just like this one.  🙂
  • Did you know that many of our veterans suffer from TBI?  Below are some ways you can support them either through prayer or finances:
  • TBI Medical ID bracelet ~ finally there is a medical ID bracelet stating that you have had a TBI (an important factor in an emergency situation)!  As a bonus, you can order one while at the same time support our veterans who will tailor make it to fit you… Handmade by Heroes… https://handmadebyheroes.com/collections/medical-related-paracord-bracelets?page=2

info

  • Please know that all words on this website that are underlined and blue are an automatic link to more information on the present topic.
  • Many of my fellow TBI friends have lost the gift of reading… whether it be comprehension, stamina, decoding or vision challenges.  
    • For this purpose, I will slowly be adding this icon & words: listeninglinkzzzz listening link to each section of writing.  When you click on this, you will connect to a YouTube link or a podcast that will READ that section TO U!  
    • Please know there are many stories, songs and TED talks embedded throughout our website where reading is not necessary!

tUtDe = tripping Up the Down escalator

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis they are not used for personal profit or any financial gain. Thank you.*

looking to things unseen

Lately I have been stirring.  Nothing seems to satisfy me.  I cannot quench my thirst or curb my hunger… and for what exactly… I don’t even know.  

Depression is sneaky and nasty all in the same respects.  One thing with depression due to brain injury, it seems to be more of a random battle rather than a consistent one.  That’s the sneaky part.  It feels like I get punched in the gut while looking the other way.  I can be going along… seemingly in a capable rhythm… then without anything dramatic taking place, with no warning, I get in a slump… the depression swarms in, takes over, and is essentially… overwhelming.

For example, let’s just take one aspect of the day – a person’s morning routine. My “pie in the sky” daily routine would be to get up at 7:30a; walk my dogs; have an uninterrupted quiet time with the Lord; 30 minutes of toning exercises while watching the news; take a shower; get dressed and ready for the day by 10:00a…maybe even take a rest break at that moment (because that really was a lot of ‘roogaboog’ for one PCS person :))!  But I’d feel okay with that break because of all the morning I had already enjoyed. Mind you, this is quite a submission on my part, being that I used to do all of the above by 7:00a and then leave for an ambitious work day.  But, I think I am over being depressed about that and now willingly concede to a 7:30a beginning to my day.

Yet, even with conceding to a start time of 7:30a, post-injury I can barely make that happen. For one, to treat my injury fairly…getting up is a chore. Then, if I do manage an earlier start to my day and try for an efficient morning… chances are I will get interrupted and all of a sudden it is 2:30p and all I can do for the life of me is grab a snack and lay my weary body down in bed (and how can I be weary from not even accomplishing half of my morning routine much less anything else?).  That’s the catch!

Now this sounds pathetic to those of you who are still able to work and may not be experiencing Post-Concussive Syndrome (PCS).  But it might make sense as you watch a close friend or a family member struggle to fully recover from a head injury.  On the other hand, to some of you it may sound ungrateful as I read many of your stories and see that it is just a challenge for you to now walk, talk, or care for yourself!   …my apologies…  My legs work.  My arms move normally.  For the most part, I can walk, talk and care for myself.  But on those unpredictable days, there is that untouchable disconnect between my drive and my ability… like there is a gap in my injured brain somewhere now that wasn’t there before.  It’s the Grand Canyon between desire and doing… and I think that makes me lose hope at times.  It is depressing.

Isn’t this new way of life confusing?  I am 6+ years into it and I still try to be the old me!  In so many ways I have admitted and given into it… but there is still that old wiring in my brain that has those expectations of myself… and that desire to get the most out of each day.

”So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.”

2 Corinthians 4:16-18

I have to hold onto those wise words or I will fall apart.  I believe in Jesus Christ and have gratefully accepted Him as my Lord and Savior… because of this… He promises that my life has already begun an eternity with Him.  So in my light and momentary afflictions, my ‘slump’… I need to read, reread, and s l o w l y  digest the HUGE promises in these verses!  

He is asking me to  not  even  look  at  what  I  can  see… what?  Who says that?!?!  

But He is right.  If I look at what I see, I see a woman who has had her world turned upside down;  income and future plans stripped from her;  success in multiple college degrees and a passionate career – gone;  an athletic body dissolved into flubber;  joy in serving outwardly – gone;  parenting abilities limited;  social escapes – gone;  the list goes on and on….

But what I can sometimes see, when I see my life through His eyes, is how much He loves and has blessed me. I am a woman who now leads a calmer life than I’ve ever led before; who has an income that has been dramatically cut, but is somehow making it financially; whose body is a bit larger, but still fairly healthy; who now finds joy in serving quietly; whose parenting, though limited now to more quiet one on one moments with my daughters, often seems all the more special because of it;  social moments now mean time spent only with very close friends who understand;

And this new, unseen list, goes on and on….

The hopeless list is more apparent. I see it more easily. I feel it more often. But He says that this temporary illness is nothing in comparison to the infinity I will spend with Him in a place of no pain, no fear, no disappointments, no slumps…no NOT ONE…and that is a beautiful vision of the unseen!

Peel my eyes open today, Lord, so that I can place my HOPE in the UNSEEN and let go of what I do see!       In Jesus’ Name, Amen.

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis they are not used for personal profit or any financial gain. Thank you.*

a gray day is okay

 

gray day is ok

Photo:  macaroni.and.drake@instagram

Is it? Is it okay to just accept the gray day? I think so. I think, yes…it is OK to just plain feel… whatever…even if it feels like it’s the end of the world. Since my head injury, sometimes I just forget to feel and be sad. Instead I drag it out as this, well, half-hearted happiness.  But I believe the key to this disguised treasure is in my perspective. In this photo, my daughter rushed inside the house and had to show me this “AWESOME” picture she took!  To me, it was just one of a hundred or so pictures she’d taken that day, but she persistently begged me to look at it. I was having an overwhelming brain day – spinning – anti-productive – nauseated- …seriously…what could be that awesome?  Yet she had to show me….

..This picture, of a gray, gloomy, April day when all us northerners dream of a spring that no longer seems possible!  Yes…that’s the picture she was telling me was beautiful!?  “Mama, look at the colors. The fog, how it takes over the trees and our lane. The snow, how it imitates the color of the sky. Look at the color of my sweatshirt and my nails against the other neutral colors….”  Her list went on, and on and on.  And then, I saw it!  This day had a beauty only she could see. I didn’t know it, but I needed her to bring life to this day, to light (or life) for me… and she did!

The Lord says that He will never leave us nor forsake us. In my daughter’s photo He intricately crafted the beauty of His nature and showed me what was beyond my initial understanding – that He will meet us anywhere we call on Him. He took the obvious gloom of a cold April day in Minnesota and moved me beyond and ABOVE it. Now I was able to see the gray through His eyes. There is beauty there, because He created it. He showed me the beauty of gray – the beauty to be found in my every-day life of just trying to make it sanely to tomorrow.

Is your situation gloomy today?  You’ve taken another step forward and moved two steps back on an escalator moving the wrong way, possibly? Your circumstances haven’t changed – it’s the same old street on another dreary April day. But would you do this? Would you challenge yourself to find beauty in yet another cold, gray day? It’s His April. Gray is a color that He created. There must be some light there. Some life.

As you lie in your bed, feeling the same old pain…

As you get a call from your doctor, hearing the same old news…

As you try to make yourself a meal, and struggle with the same old confusion…

I CHALLENGE YOU!

…what is the hidden beauty that is waiting for you to discover it?  Find it… Write it… Post it on your mirror… Leave a note to yourself in your kitchen about the blessings there…. Walk outside and breathe… what blessings are you inhaling?  Come back inside… do you have warmth?  That’s a blessing.  Can you feel the warmth?  That’s a blessing.  Can you see your room, your chair, your couch?  That’s a blessing.

“Now to him who is able to do far more abundantly than all that we ask or think… to him be glory… throughout all generations, forever and ever. Amen.”    Ephesians 3:20-21

Tell the world your blessings…. and we, too, will be blessed.  Please add just ONE blessing you found today in the comment link below…

*This document is the sole property of L. Marie Drake © 2017.  Permission granted for printing copies of this page on the basis they are not used for personal profit or any financial gain. Thank you.*